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Meet Olivia

Olivia Little Cystinosis Rare Disease

Olivia Ann Mae Little was born a healthy 7lbs.14oz and measured 20 ½ inches long. Olivia did everything “normal” babies do; she smiled, laughed, rolled over, babbled and played.

 

However, that soon changed around 6 months when she found a love for water and hated food. Olivia had zero interest in food and this soon became a daily battle. The doctors kept encouraging her parents to keep trying new foods, to keep the environment calm and to limit her water intake. However, by nine months Olivia’s mom Erin knew something was not right. Olivia was no longer thriving as she had been up until now. Olivia still hated eating and would drink her way through meals, but thankfully Olivia loved her bottle. She soon learned the word water or as she called it ‘wawa’.

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Little Family Cystinosis Research Fundraising

Olivia was no longer thriving as she had been up until now. Olivia still hated eating and would drink her way through meals, but thankfully Olivia loved her bottle. She soon learned the word water or as she called it ‘wawa’.

Cystinosis Treatment Routine
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